Life has been plodding along relatively normally...that is, apart from Edward's current disability. To be honest, because he has adapted so well, we've found the last 4 weeks much easier than we were expecting. Obviously things are harder - Edward has to tell us where he wants to sit and he changes his mind very frequently but, generally, he hasn't been overly frustrated. Actually, 'remarkable' is the best word I can find to describe him.
The nights are sometimes problematic - last night was a bad night (wake ups hourly / half hourly from 2.30 - 5.30am) but usually I only have one wake up per night which is very manageable.
My biggest worry is his next surgery this Wednesday 2nd June. If we only had to stick with what we're used to that would be fine, but another op followed by a further 6 weeks in a spica cast is obviously daunting.
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